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Sickle Cell disorder not death sentence, says SCFN

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Sickle Cell Awareness Drive
Sickle Cell Awareness Drive
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The National Director, Sickle Cell Foundation Nigeria (SCFN), Dr Annette Akinsete, has urged persons with Sickle Cell Disorder (SCD) to live meaningful lives because it is not “a death sentence”.

She spoke during a sensitisation and awareness campaign organised by the Coalition of Sickle Cell NGOs under “The Red Umbrella Walk for Sickle Cell Disorder’’ campaign.

The News Agency of Nigeria (NAN) reports that the awareness campaign has as its theme: “The Power of Hope: Step Up for Sickle Cell’’.

She said: “Here, we have not just Sickle Cell Foundation of Nigeria, we have other NGOs, and what we have done is bring them all under one umbrella to have what we call ‘The Coalition of Sickle Cell NGOs.

“ Some member NGOs of the coalition included Crimson Bow Sickle Cell Initiative, SAMI Sickle Cell Management Initiative, Sickle Cell Foundation Nigeria, others.

“We want to speak with one voice to carry the information to the people that Sickle Cell is not a death sentence.

“It always used to be thought of as an incurable disease, but nowadays, we know that persons with SCD are living longer for decades. We had a female carrier who died at the age of 94.

“As long as Sickle Cell carriers are properly treated and properly managed, they can live long productive lives.

“ The walk on Saturday was a precursor to ‘World Sickle Cell Day’ , marked annually on June 19 and it held simultaneously in Lagos, Warri, Benin, Ilorin and other states in Nigeria.’’

See also NGOs partner to train students on health emergency response

According to the Vanderbilt University Medical Centre, Sickle Cell disease (SCD) is an inherited blood disorder. That means it is passed down from a parent’s genes. It causes the body to make abnormal haemoglobin.

“Haemoglobin is the protein in red blood cells that carries oxygen to all parts of your body. When you have SCD, your body’s tissues and organs don’t get enough oxygen.

“Healthy red blood cells are round and move easily all over the body. With SCD, the red blood cells are hard and sticky. They are shaped like the letter C (and like a farm tool called a sickle).

“These damaged red blood cells (sickle cells) clump together. They can’t move easily through the blood vessels. They get stuck in small blood vessels and block blood flow.

“This blockage stops the movement of healthy oxygen-rich blood. This blockage can cause pain. It can also damage major organs,” the News Agency of Nigeria reports.

To avoid bearing children with sickle cell disorder, Akinsete encouraged people to go for genetic counselling and testing in order to know their genotype; whether they are AA, AS or SS.

“We counsel young people to know their genotype early enough before they begin to date or plan for marriage or begin to have a family of their own.

“Sickle Cell is a genetic disorder, so couples need to know how it’s inherited and how to avoid it,” she said.

On the treatment and management, Akinsete said the treatment and management were quite expensive as carriers had to be on medications every day of their lives.

“Sickle Cell carriers need basic medications like Folic Acid, Hydroxyurea and malaria prevention medications daily. These medications help to prevent crises in patients.

“However, there are now experimental medications such as Arbutamine, which, in the past, patients couldn’t access, but are now accessible through clinical trials,” Akinsete said

She advised patients to eat a balanced diet, drink plenty of water, avoid excessive exercise as well as avoid excessive cold and heat in order to avoid the crisis.

Also, Mrs Toyin Adesola, Executive Director of Sickle Cell Advocacy And Management Initiative and Chairperson of Coalition of Sickle Cell NGOs, said that sickle cell disease was a major public health concern in Nigeria.

She said Nigeria had one of the highest burdens of sickle cell disease in the world, with a significant portion of the population carrying the sickle cell trait.

“It is estimated that over 150,000 children are born with sickle cell disease in Nigeria each year, making it the highest number of newborns affected by the condition in any country.

“This event holds immense significance as we come together to raise awareness about sickle cell disease and advocate for better healthcare and support for individuals living with this condition.

“It is a testament to our commitment to making a difference in the lives of those affected by sickle cell disorder.

“Today, we stand here with our red umbrellas held high, symbolising unity and protection for those who face the daily challenges of sickle cell disease.

“Each step we take represents a step towards progress, hope, and empowerment.

“Our united presence sends a powerful message to the world—that we are here, visible, and demand change’’

“Through this Red Umbrella Walk, the 7th edition, we strive to educate the public about the realities individuals faced with sickle cell disease.

“We aim to break the stigma surrounding this condition and foster community among patients, their families, and the wider society.

“We will shatter misconceptions and build a more inclusive and supportive environment,’’ she said.

(NAN)

 

 

 

 

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Nigeria Commence Development of First National Rehabilitation and Assistive Technology Strategic

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The Federal Government has commenced the development of Nigeria’s first National Rehabilitation and Assistive Technology Strategic Plan aimed at strengthening disability-inclusive healthcare and expanding access to rehabilitation services nationwide.

The initiative was unveiled on Tuesday in Abuja during a three-day stakeholders’ zero draft meeting on the proposed national rehabilitation and assistive technology strategic plan.

Speaking at the event, Dr Ahmed Ozi, Director of the Family Health Department, Federal Ministry of Health and Social Welfare, described the exercise as Nigeria’s first coordinated effort on rehabilitation services.

He said the initiative would establish a national framework for rehabilitation and assistive technology in the country.

Ozi said the strategic plan reflected the ministry’s commitment to achieving Universal Health Coverage by ensuring that persons with disabilities had equitable access to healthcare services.

He said that the initiative aligned with the World Health Organization (WHO) guidance on rehabilitation and disability-inclusive healthcare.

According to him, the strategic plan will serve as a roadmap for strengthening rehabilitation services and expanding access to assistive technology across the country.

“Disability can affect anyone at any stage of life. We must therefore promote empathy, protection and support for all citizens requiring rehabilitation services,” he said.

Ozi added that the strategy would guide rehabilitation programmes and strengthen disability-inclusive health policies nationwide.

He acknowledged that the document remained a zero draft and expressed confidence that stakeholders’ contributions would improve its quality and implementation potential.

The director urged participants to provide technical expertise and recommendations to ensure the development of a comprehensive and practical national strategy.

Also speaking, Head of the Georgia Society for Healthcare Engineers (GASHE), Dr Umeh Sunday, said work on the national rehabilitation strategic plan began following the establishment of a Rehabilitation Technical Working Group by the ministry.

Sunday explained that Nigeria previously lacked a federal rehabilitation policy, leaving states without a coordinated national framework for rehabilitation services.

He said the proposed strategy aligned with the WHO Rehabilitation 2030 initiative and the World Health Assembly Rehabilitation Strategy 2025–2035.

According to him, rehabilitation is an essential component of healthcare and should commence whenever patients require such services rather than after complications arise.

Sunday said that the Technical Working Group conducted nationwide situational assessments using WHO guidelines before drafting the strategy.

“Preliminary drafts have been prepared and are undergoing stakeholder review to reflect Nigeria’s rehabilitation priorities and healthcare realities,” he said.

He added that the workshop would further refine the document before endorsement, official inauguration and nationwide implementation.

Sunday urged stakeholders to make meaningful contributions that would strengthen rehabilitation services and improve outcomes for Nigerians requiring such care.

The Regional Rehabilitation Consultant for Africa, Dr Nassib Tawa, said the development of the strategic plan followed nearly two years of preparation and consultations.

Tawa said the strategy was informed by findings from a national situational assessment of rehabilitation services across Nigeria.

“The assessment identified major challenges, including the absence of a national rehabilitation policy and inadequate financing.

“It also revealed infrastructure deficits, limited clinical spaces and shortages of trained rehabilitation professionals nationwide,” he said.

According to Tawa, one in five Nigerians could benefit from rehabilitation services or assistive products.

He said the government would prioritise realistic and achievable interventions within the proposed five-year implementation period.

Tawa explained that the strategic plan would run from 2027 to 2031 and outline national priorities, objectives, vision, mission and implementation targets.

“Five technical task teams will review key workstreams before consolidating recommendations into the final draft.

“The strategy will promote a shared national understanding of quality rehabilitation benefiting every Nigerian requiring such services,” he said.

He added that the plan would strengthen partnerships, improve coordination and expand financing, infrastructure, workforce development and access to assistive technology across the country

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NMA Inaugurates Newly Elected Executives in Zamfara

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The Nigerian Medical Association NMA, Zamfara chapter, on Saturday inaugurated newly elected executives to steer the affairs of the association for the next two years in the state.

In his acceptance speech, Salahudden pledged to provide transparent and inclusive leadership aimed at advancing the interests of medical practitioners and strengthening healthcare delivery across Zamfara.

He said his administration would collaborate with relevant stakeholders to promote the medical profession and support initiatives that would improve the health sector in the state.

The new chairman also appealed to members of the association and other stakeholders to support his leadership to enable it achieve its goals and objectives.

Earlier, the outgoing chairman, Dr Ibrahim Hano, commended medical doctors in the state for the support and cooperation extended to his administration throughout its tenure.

Hano said his leadership recorded significant achievements, particularly in promoting members’ welfare, unity, mutual understanding and professional harmony among doctors across the state.

According to him, the association under his stewardship maintained cordial relationships with key stakeholders, especially the state government, resulting in improvements in healthcare service delivery.

Administering the oath of office, former NMA Chairman, Dr Abubakar Danladi, urged the newly elected executives to justify the confidence reposed in them by members.

Danladi advised the new leadership to carry all members along and promote teamwork, unity, peace and stability within the association for sustained progress and professional development.

The officials were elected during the association’s 2026 Annual General Meeting and Scientific Conference held in Gusau, the state capital.

The election was conducted under the supervision of the electoral committee chaired by Dr Ibrahim Halilu, who oversaw the voting process and declaration of results.

Dr Murtala Salahudden, Incident Manager of the Polio Emergency Operations Centre, Gusau, emerged chairman after polling 110 votes to defeat Dr Bashir Isa of Yariman Bakura Specialist Hospital, Gusau, who secured 55 votes.

Six other executive officers emerged unopposed and were subsequently inaugurated to serve alongside the chairman in administering the affairs of the association during the tenure.

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U.S.-Based Nigerian Scholar, Nwajiaku, Team Build AI Robot for Jaw, Bone Surgery in U.S.

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U.S.-based Nigerian scholar and control engineer, Mr Kenechukwu Nwajiaku
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A U.S.-based Nigerian scholar and control engineer, Mr Kenechukwu Nwajiaku, alongside his research team, has developed an intelligent robotic control system that bends and twists skeletal fixation plates to fit patients’ jaws or bones precisely.

Nwajiaku disclosed this in a telephone interview with the News Agency of Nigeria (NAN) in Lagos on Saturday.

He said the innovation combined robotics, machine learning, and advanced control technology to shape patient-specific surgical plates accurately, potentially making reconstructive surgery easier and more precise.

The research team—comprising scholars from Case Western Reserve University and The Ohio State University—includes Nwajiaku, Ethan Regal, Tyler Babinec, Yi Jin, Brian Thurston, Glenn Daehn, Changyong Cao, David Dean, Kenneth Loparo, David Hoelzle, and Robert X. Gao.

“The system uses a Gaussian Process-Enhanced Model Predictive Control framework, known as GP-MPC, to predict how a fixation plate will respond while being bent and twisted.

“Reconstructive surgeons use fixation plates to restore damaged facial and jaw bones following trauma, cancer, congenital conditions or surgical treatment.

“These procedures can affect a patient’s appearance and essential functions, including speaking, chewing, breathing and swallowing, making accurate plate shaping important to surgical outcomes,” he said.

Nwajiaku explained that surgeons often shaped the plates manually to match each patient’s anatomy.

However, the process can be difficult and time-consuming because the metal may partially return toward its original form after force is removed, a behavior known as “springback”.

“Our system predicts the plate’s response, compensates for springback and determines the deformation required to produce the desired shape.

“Working in control and automation taught me that machines do not always behave in the real world exactly as mathematical models predict.

“This inspired me to combine advanced control systems with machine learning so that machines can learn from data, account for uncertainty and make more accurate decisions,” he added.

The Nigerian-born engineer noted that the framework combines physics-based modeling with machine learning to improve the robot’s accuracy and consistency.

“Physics helps us understand how the system should behave, while machine learning accounts for what the simplified model may be missing.

“Combining them creates a control system that is better equipped to handle the nonlinear and uncertain behaviour of the material.

“The peer-reviewed study conducted at Case Western Reserve University evaluated the technology through computer simulations and experiments on a physical robotic testbed.

“In combined bending-and-twisting tests, the GP-enhanced system improved deformation accuracy by approximately 22 per cent along the bending axis and 34 per cent along the twisting axis compared with conventional Model Predictive Control.

“The system also recorded low variability during stochastic simulations, suggesting reliable performance under uncertain conditions,” he said.

Nwajiaku pointed out that further development and clinical validation would be required before the technology could be introduced into routine surgical practice.

He, however, noted that the findings demonstrate the potential of artificial intelligence and robotics to support the precise and automated production of patient-specific surgical components.

“I am inspired by the possibility that the same principles used to make industrial machines more intelligent and precise can be applied to challenges that directly affect people’s lives,” he said.

Nwajiaku, whose research interests include artificial intelligence, machine learning, advanced control systems, robotics, digital-twin technologies, and intelligent automation, added that similar technologies could support other medical and industrial processes requiring precise material shaping and reliable decision-making.

“I want my work to contribute to intelligent systems that solve real problems and create benefits beyond a single laboratory or organisation,” Nwajiaku said.

The research points toward a future in which surgical expertise, robotics, physics-based prediction, and machine learning converge to enable safer, more precise, and patient-specific reconstructive procedures.

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